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Remember staycations, when we all stopped going abroad because of the recession? Well I’ve gone one better by not even leaving home at all. In fact two better because I’m still working during the days!

Julie and her dad have set off for Scotland, leaving me to look after Duncan. We get on pretty well, my son and I, but we’re not exactly in each other’s pockets. So once I’ve cooked supper for the two of us I have most of the evening free. Hours! With almost complete and solitary control of both the television and the stereo.

I love Julie so much, but it’s only when she’s away that I appreciate how much time her illness takes up; how much time I spend checking in with her, discussing problems, dreaming up new strategies. Only now I realise how many things I do every day just to make sure she stays OK; how many TV programs I watch that I don’t really Iike, just to keep her company, how much food I prepare just to make sure she eats sensibly, how many emails I compose to the school or her care coordinator. And then there are the many things I don’t do in case she suddenly needs me: get lost in a good book, listen to music I love, phone friends, have a second drink (in case I have to drive).

We all do these things for the people we love; we all have moments when we grumble about it; there are far worse things in life than having to compromise on the television you watch. But oh what a luxury to have a few weeks alone!

So for the next couple of weeks I’m going to spend my evenings watching some operas on DVD, reading lots of books, listening to lots of music, and down a few extra beers. That’s all I need from a holiday at the moment.

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The situation is this: I am not terribly ill, but I am in some pain and discomfort, and feeling very sorry for myself. I wait impatiently for the date of my operation to be set, with a growing list of things that have to be put off or put on hold until I know. Can I finish planning the summer holiday? Can I promise to take Julie to a university open day? Can I commit to visiting my father?

In the meantime, my energy is in increasingly short supply, and must be meted out carefully. Did I really bake bread once? I cannot imagine kneading bread dough at the moment! The house has to run itself as much as it can. I have two firm sources of support: principally Joe, who runs all sorts of errands for me, often when he is exhausted himself, and who is the proverbial pillar of strength. My other ally is the Internet: now I not only order food, but whole dinners. If you live in England, I can thorough recommend family meals from Cook, which are delivered frozen and can be heated up in the time it takes a teenager to ask (sulkily) “what’s for dinner?”

Two things that I find the energy for because they are life-affirming. My office now looks over the botanic gardens, and I walk there every lunchtime, come rain or shine, absorbing the colours, the blossom, the textures, the smells. The other is music. I have signed up for a short online course to learn about Beethoven (from Coursera) and wherever I have ten minutes alone I listen to a movement from one of the piano sonatas: really listen, not have it on as background music. Both of these are luxuries I could not even dream of last year when Julie was so unwell and so dependent that I had no lunchtimes, nor ever ten minutes alone. How I relish this now!

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